My life has been incredibly busy these past few months due to a dear family member who had been ill. It took a comment from a reader of this blog for me to realize that I hadn't updated in a long, long time.
An update on what has happened since I found out about my syrinx:
I started having crazy jerking motions all the time preceded by strange, strange sensations. The neurologist finally figured out I had herniated disks in my neck and sent me to physical therapy. The PT cured the pain.
The docs didn't know what was causing all of the jerking motions my neck, chest, and legs were doing. They ran a bunch of tests and determined that I wasn't having seizures. 2400 mg of gabapentin and 30 mg of baclofen per day have made the jerking motions manageable.
I no longer have hundreds of them a day. They are called myoclonic jerks, and are harmless. They make me tired when I have them, but are not anything more than a hassle now.
The biggest news is about the syrinx. I had my 6 month MRI, and it hasn't gotten any bigger. The neurosurgeon said that it isn't big enough to be a concern, but that he wants me to have another MRI in a year. In fact, in this most recent MRI, the syrinx didn't show up in most of the MRI views like it had in the MRI I had six months ago.
My vantage point is becoming clearer now that I have found some relief. I'm hoping the fog continues to lift.
